Being a caregiver for an ailing parent, spouse, child, or other loved one can feel like a lonely undertaking. It needn't, even if you don't have family nearby to pitch in. Help for caregivers is available from various organizations. Once you learn what's available, it may be easier to chart a less-demanding course toward meeting the needs of your spouse, relative, or friend.
Here are some types of services and professionals you might want to investigate.
Adult day services. These programs offer comprehensive packages of assistance, though what's in the package varies from place to place. Services may include transportation, nursing care, meals, personal care (such as help with bathing or toilet use), social opportunities, or rehabilitative activities. Such facilities are immensely helpful if your loved one needs supervision or assistance with daily activities, health care, or social support for physical or cognitive impairments. Typically, adult day services are open during normal business hours. Some offer evening and weekend hours.
Certified nurses aides. These trained aides can help with activities of daily living, such as bathing, dressing, and personal care. Keep in mind that they are not nurses, and so can't administer medications.
Hired companions and homemakers. You may want to hire someone to help with meals, shopping, and laundry; supervise activity; and provide companionship and transportation. Some people may also be willing to help with personal care. An informal arrangement — such as a college student who lives in a home and provides help in exchange for rent — can work well.
Home health aides. These aides perform personal services such as bathing and dressing, and may do light housekeeping.
Meal programs. Hot, nutritious meals may be available through programs like the Meals on Wheels Association of America (703-548-5558, or www.mowaa.org) or the federally funded Eating Together Program, which offers lunch and companionship at community centers. Senior centers, community groups, or religious organizations may have similar services.
Case managers. Some hospitals and health insurance plans assign case managers to oversee and coordinate health care. Case managers are often registered nurses or social workers. They help coordinate services, keep tabs on a patient's progress, and communicate with the patient, caregiver, family, clinicians, and key departments, such as billing.
Nurses. Nurses offer skilled nursing care, such as inserting intravenous lines, cleaning wounds, and changing bandages. They can also administer medications.
Physical, occupational, or speech therapists. These trained professionals may do in-home therapy sessions.
Respite care workers. Respite care workers provide caregivers with time off from their caregiving duties.
Transportation services. Some communities offer free or low-cost transportation to medical appointments for seniors or people who are disabled. Other potential sources of free or low-cost transportation help are religious and community organizations, such as churches or synagogues, councils on aging, and senior centers.
The United Way (www.unitedway.org) and other national organizations may be able to refer you to services in your community, useful information, and assistance. For example, the Alzheimer's Association (www.alz.org ) offers a 24-hour help line (800-272-3900) and support groups throughout the country. Some of its chapters also offer training programs, assistance with coordinating care, and other services.
Another good resource is a website sponsored by the National Health Information Center: www.healthfinder.gov. It can help you locate resources in your area. A local agency on aging, geriatric care manager, hospital case manager, or social worker can also advise you about local services and may be able to suggest ways to cover the costs.
Some geriatric-care specialists focus on assisting older people. Others have expertise coordinating care and services for people of all ages with disabilities or debilitating illnesses.
To learn more about geriatric-care managers, or to locate a geriatric-care manager, contact the National Association of Professional Geriatric Care Managers at 520-881-8008 or www.caremanager.org.
Although working with a geriatric-care manager may be costly, such expertise can often save money and regrets, especially if you are scrambling to arrange care from afar. The cost of a geriatric-care manager is usually borne by the client or family, rarely by long-term care insurance. If you plan to work with a geriatric-care manager, be sure to get a written agreement outlining the scope of services offered and costs. This document can also help you decide which tasks, if any, might be undertaken by family and friends to save money.